Mental Health of Young People with Developmental Disabilities

Project Member(s): Goodall, S., Viney, R.

Funding or Partner Organisation: National Health & Medical Research Council (National Health Medical Research Council)

Start year: 2013

Summary: This program of research will consist of 3 phases: Phase 1) Population level ¿My Say¿ survey of parents/caregivers of children with a disability determine base rates of emotional and behavioural problems and current awareness of relevant services. Phase 2) Training of professionals and rollout of a cohesive set of early intervention parenting programs (SSTP) to parents/caregivers of children with any disability across NSW, Queensland and Victoria. Phase 2 will also include a trial evaluating the effectiveness and cost-effectiveness of the interventions within a subsample of 900 parents/caregivers of children with diagnosed developmental disability aged 2-12. Phase 3) a population level survey of parents/ caregivers of children with a disability to examine prevalence of social, emotional and behavioural problems after the roll out of the Stepping Stones system. The phase 2 sub-sample will also used to evaluate the cost-effectiveness of SSTP. Standard economic evaluation guidelines suggest that costing health care interventions should take a broad perspective. Including linked data (MBS, PBS and immunisation register) in our evaluation of the cost effectiveness of the Stepping Stones Triple P (SSTP) parenting program will allow us to estimate the broad impact of the program on health services utilisation and costs. This information is important for estimating the effectiveness of SSTP, as the intervention may lead to different patterns of referral and use of Medicare services and medicines subsidised on the PBS. Ultimately, this will influence decisions around efficient provision of early intervention programs in children with developmental disabilities.

Publications:

Tellegen, CL, Schoch, M, Hodges, J, Peters, K, Sanders, MR, Tonge, B, Einfeld, S, Sofronoff, K, Gray, KM, Howlin, P, Emerson, E, Arciuli, J, Rice, L, Horstead, S, Clarke, K, Bezzina, L, Evans, H, Andersson, E, McAuliffe, Z, Haas, K, Louie, E, Hoath, F, Worrall, S, Stace, L, Silove, N, Kostelas, P, Caruana, J, Dossetor, D, Salvador-Carulla, L, Henderson, K, Phillis, K, Rotolone, C, Henry, T, Panahi, B, Aery, A, Hinton, S, Thompson, D-M, Ommensen, B, Mazzucchelli, T, Taffe, J, Hu, N, Boland, R, Knott, R, O'Hagan, G, Rose, O, Shortt, F, Cawood, D, Blackmore, R, Wallman, E, Keating, C, Teague, S, Viney, R, Goodall, S & Arora, S 2024, 'The role of social identity and self-efficacy in predicting service providers’ use of Stepping Stones Triple P following training', Children and Youth Services Review, vol. 156, pp. 107318-107318.
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Arora, S, Goodall, S, Viney, R & Einfeld, S 2020, 'Health‐related quality of life amongst primary caregivers of children with intellectual disability', Journal of Intellectual Disability Research, vol. 64, no. 2, pp. 103-116.
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Arora, S, Goodall, S, Viney, R & Einfeld, S 2020, 'Societal cost of childhood intellectual disability in Australia', Journal of Intellectual Disability Research, vol. 64, no. 7, pp. 524-537.
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Teague, SJ, Newman, LK, Tonge, BJ & Gray, KM 2020, 'Attachment and child behaviour and emotional problems in autism spectrum disorder with intellectual disability', Journal of Applied Research in Intellectual Disabilities, vol. 33, no. 3, pp. 475-487.
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Arora, S, Goodall, S, Viney, R & Einfeld, S 2019, 'Using Discrete-Choice Experiment Methods to Estimate the Value of Informal Care: The Case of Children with Intellectual Disability', PharmacoEconomics, vol. 37, no. 4, pp. 501-511.
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Arora, S 1970, 'Using DCE methods to estimate informal care', International Society for Pharmacoeconomics and Outcomes Research Women in Health Economics and Outcomes Research, Sydney.

Teague, SJ, Newman, LK, Tonge, BJ & Gray, KM 2018, 'Caregiver Mental Health, Parenting Practices, and Perceptions of Child Attachment in Children with Autism Spectrum Disorder', Journal of Autism and Developmental Disorders, vol. 48, no. 8, pp. 2642-2652.
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Arora, S, Goodall, S, Viney, R & Einfeld, S 1970, 'The health-related quality of life of caregivers of children with intellectual disability [Conference Presentation]', 39th Annual Australian Health Economics Society Conference, Sydney.

Arora, S, Goodall, S, Viney, R & Einfeld, S 1970, 'USING A DISCRETE CHOICE EXPERIMENT TO VALUE INFORMAL CARE PROVIDED TO CHILDREN WITH INTELLECTUAL DISABILITIES', VALUE IN HEALTH, ISPOR 7th Asia-Pacific Conference, ELSEVIER SCIENCE INC, Singapore, pp. A905-A906.
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Arora, S, Goodall, S, Viney, R & Einfeld, S 1970, 'Using a discrete choice experiment to value informal care provided to children with intellectual disabilities', 38th Annual Australian Health Economics Society Conference, Perth.

Keywords: mental health, developmental disabilities, young people

FOR Codes: Health Economics, Health Policy Economic Outcomes, Health Policy Evaluation, Health economics , Evaluation of health and support services not elsewhere classified

Acknowledgement of Country

UTS acknowledges the Gadigal people of the Eora Nation, the Boorooberongal people of the Dharug Nation, the Bidiagal people and the Gamaygal people, upon whose ancestral lands our university stands. We would also like to pay respect to the Elders both past and present, acknowledging them as the traditional custodians of knowledge for these lands.