Understanding how patients and carers make decisions in Spinal Muscular Atrophy Treatment
Funding or Partner Organisation: Sydney Children's Hospital (Sydney Childrens Hospital Foundation Grants)
Sydney Children's Hospital (Sydney Childrens Hospital Foundation Grants)
Start year: 2017
Farrar, M, Carey, K, Paguinto, SG, Kasparian, NA & De Abreu Lourenco, R 2020, '"The whole game is changing and you’ve got hope”: Australian perspectives on treatment decision-making in Spinal Muscular Atrophy', The Patient: Patient Centered Outcomes Research.
View/Download from: Publisher's site
FOR Codes: Health Economics, Evaluation of Health Outcomes