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Understanding how patients and carers make decisions in Spinal Muscular Atrophy Treatment

Project Member(s): De Abreu Lourenco, R., Street, D.

Funding or Partner Organisation: Sydney Children's Hospital (Sydney Childrens Hospital Foundation Grants)
Sydney Children's Hospital (Sydney Childrens Hospital Foundation Grants)

Start year: 2017

Publications:

Farrar, M, Carey, K, Paguinto, SG, Kasparian, NA & De Abreu Lourenco, R 2020, '"The whole game is changing and you’ve got hope”: Australian perspectives on treatment decision-making in Spinal Muscular Atrophy', The Patient: Patient Centered Outcomes Research.
View/Download from: Publisher's site

FOR Codes: Health Economics, Evaluation of Health Outcomes