Understanding how patients and carers make decisions in Spinal Muscular Atrophy Treatment

Project Member(s): De Abreu Lourenco, R., Street, D.

Funding or Partner Organisation: Sydney Children's Hospital (Sydney Childrens Hospital Foundation Grants)
Sydney Children's Hospital (Sydney Childrens Hospital Foundation Grants)

Start year: 2017

Publications:

Farrar, MA, Carey, KA, Paguinto, S-G, Kasparian, NA & De Abreu Lourenço, R 2020, '“The Whole Game is Changing and You’ve Got Hope”: Australian Perspectives on Treatment Decision Making in Spinal Muscular Atrophy', The Patient - Patient-Centered Outcomes Research, vol. 13, no. 4, pp. 389-400.
View/Download from: Publisher's site

FOR Codes: Health Economics, Evaluation of Health Outcomes, Health economics

Acknowledgement of Country

UTS acknowledges the Gadigal people of the Eora Nation, the Boorooberongal people of the Dharug Nation, the Bidiagal people and the Gamaygal people, upon whose ancestral lands our university stands. We would also like to pay respect to the Elders both past and present, acknowledging them as the traditional custodians of knowledge for these lands.